Nutrition and Liver Disease in Peroxisomal Biogenesis Disorders: Diagnosis and Management
A two-part webinar series
A two-part webinar series
Live Webinar Part I: Liver – March 31, 2020, 8:00PM ET
Live Webinar Part II: Nutrition – April 6, 2020, 8:00PM ET
The NASPGHAN Foundation and the Global Foundation for Peroxisomal Disorders are pleased to present two 30-minute webinars. On March 31, we will discuss the latest treatment options for liver disease. On April 6, we will discuss nutrition regimens designed to optimize the management of affected patients.
Supported by an educational grant from Retrophin.
INTRODUCTION
ZSD affects multiple body organs with a spectrum of presentations depending upon severity of the injury to the affected organs. Liver disease and nutrition are two areas of importance to patients and families of patients with ZSD.
During the first webinar on March 31, Dr. Heubi will provide an overview of the function of the liver in health and how to assess liver function. He will discuss how liver disease and its progression may be identified in affected ZSD patients, the potential cause of the liver disease in ZSD, how it is diagnosed and potential therapy.
During the second webinar on April 6, Dr. Fleet will provide an overview of typical growth and development in children, and feeding challenges seen in those with ZSD. She will review different nutrition management options for malnutrition in ZSD.
The goal of these webinars is to improve caregiver and patient knowledge of liver disease and nutrition in ZSD so they can be better advocates for the care of patients with ZSD.
TARGET AUDIENCE
This activity is designed for ZSD patients and their caregivers.
LIVE WEBINAR PART I: LIVER
March 31, 2020 - 8:00PM ET
March 31, 2020 - 8:00PM ET
PRESENTER
James Heubi, MD
Professor of Pediatrics
Director, Center for Clinical & Translational Research
Associate Dean for Clinical & Translational Research
University of Cincinnati College of Medicine
Cincinnati Children’s Hospital Medical Center
Cincinnati, OH
MODERATOR
Katie Sacra
GFPD Family Education and Engagement Liaison
The Global Foundation for Peroxisomal Disorders
LEARNING OBJECTIVES
Upon completion of this activity, participants will be better able to:
- Describe the role of the liver in health and disease
- Define the pathophysiology of liver disease in ZSD
- Identify potential therapies for liver disease and their mechanism of action
LIVE WEBINAR PART II: NUTRITION
April 6, 2020 - 8:00PM ET
April 6, 2020 - 8:00PM ET
PRESENTER
Sarah Fleet, MD
Dir., Growth and Nutrition Program
Attending Physician, Gastroenterology, Hepatology & Nutrition
Boston Children’s Hospital
Instructor of Pediatrics, Harvard Medical School
Boston, MA
MODERATOR
Katie Sacra
GFPD Family Education and Engagement Liaison
The Global Foundation for Peroxisomal Disorders
LEARNING OBJECTIVES
Upon completion of this activity, participants will be better able to:
- Define typical growth and development, as well as malnutrition and failure to thrive as it relates to ZSD
- Describe the pathophysiology of vitamin deficiencies in ZSD, and supplementation requirements
- Define common feeding problems in patients with ZSD
- Define the role of caloric supplementation of formula and use of gastrostomy tube feedings to optimize nutrition
- Review other possible dietary interventions
- Describe a successful multidisciplinary approach to treatment of children with feeding difficulties
DISCLAIMER
The content and views presented in this educational activity are those of the authors and do not necessarily reflect those of The NASPGHAN Foundation or GPFD. This material is prepared based upon a review of multiple sources of information, but itis not exhaustive of the subject matter. Therefore, healthcare professionals and other individuals should review and consider other publications and materials on the subject matter before relying solely upon the information contained within this educational activity.
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